Besides our local fundraising efforts, for the past few years we have become involved in helping the Curing Retinal Blindess Foundation with their Advocating efforts.
ARVO - The Association for Research in Vision and Opthmalmology is the largest and most respected eye and vision research organization in the world. For the past two years, CRBF has hosted a dinner during their annual meeting inviting many researchers and top field professionals to collaborate during the evening on the best way to keep our mission moving forward.
Global Genes - Rare Patient Advocacy Summit. This summit is held once a year in California. Last year were fortunate enough to have multiple board members attend this very informative conference. This is one of the largest gatherings of advocacy groups for rare disease in the country. We are able to learn from other groups, share our stories and be inspired.