Eyes for Olivia was created to help with our local fundraising efforts for the
Curing Retinal Blindness Foundation.
At the age of four, our daughter Olivia was diagnosed with a rare retinal disease
called Lebers Congenital Amaurosis due to a mutation in the CRB1 gene. This
disease causes progressive vision loss and there currently is no cure. Although
we are very grateful that Olivia still has a significant amount of her vision, due
to the progressive nature of the disease she will continue to slowly lose the
vision that she has. We have no way of knowing how quickly the progression of
vision loss will occur or if or when Olivia will lose her vision completely.
The Curing Retinal Blindness Foundation is made up of other families like
ours. Together we are fundraising, raising awareness and advocating for
research towards a cure for CRB1 related retinal disease.
Please visit our foundations website to see more information on the Curing
Retinal Blindness Foundation and the amazing progress we are making.
Thank you for visiting our site. Please visit our other pages and plan to attend
one of our fundraisers. Or, visit the donate page and make an online
donation direct to Curing Retinal Blindness Foundation on behalf of Olivia
and the Hoffman family.
To see more information check out our facebook page Eyes for Olivia.
Eyes for Olivia