Eyes for Olivia was created to help with our local fundraising efforts for the
Curing Retinal Blindness Foundation.
At the age of four, our daughter Olivia was diagnosed with a rare retinal disease
called Lebers Congenital Amaurosis due to a mutation in the CRB1 gene. This
disease causes progressive vision loss and there currently is no cure. Due to the
progressive nature of the disease she will continue to slowly lose the remaining
vision that she has. We have no way of knowing how quickly the progression of
vision loss will occur or if or when Olivia will lose her vision completely.
The Curing Retinal Blindness Foundation is made up of other families like
ours. Together we are fundraising, raising awareness and advocating for
research towards a cure for CRB1 related retinal disease.
Please visit our foundations website www.crb1.org to see more information on
the Curing Retinal Blindness Foundation and the amazing progress we are
making.
Thank you for visiting our site. Please visit our other pages and plan to attend
one of our fundraisers. Or, visit the donate page and make an online donation
direct to Curing Retinal Blindness Foundation on behalf of Olivia and the
Hoffman family.
To see more information check out our facebook page Eyes for Olivia.
"Hello, this is Olivia and I would like to say a few
words to you myself. All of the money that we raise
goes to the Curing Retinal Blindness Foundation. This
foundation is working incredibly hard to find a cure
for the disease that affects my eyes. I have a lot of
faith in the foundation that they will one day find a
cure. Honestly, I do not know how much longer I will
be able to continue taking dance classes, reading, or
even seeing the beautiful colors that surround us
every day. I don't even know if I will be able to drive
when I turn sixteen. I don't want to lose all of these
things that we constantly take for granted because we
don't realize how lucky we are to have them. Please,
help me to save my vision. I would be forever grateful
for your endless kindness. Thank you"